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Product Details

ISBN-13:
9781624381195
Publisher:
TF Publishing
Publication date:
05/15/2015
Sales rank:
181,187
Product dimensions:
12.00(w) x 12.00(h) x 0.13(d)

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by Anne-Dauphine Julliand
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Product Details

ISBN-13:
9781628724448
Publisher:
Arcade Publishing
Publication date:
02/10/2015
Pages:
208
Sales rank:
568,999
Product dimensions:
6.00(w) x 8.90(h) x 0.80(d)

Overview

 

Thaïs is almost two. Like most well-loved children, she is happy. She laughs as she runs on the beach. But her footprints in the sand, with toes turned out, tell a different story. Two Small Footprints in Wet Sand relates the overwhelming tragedy experienced by a family as a result of a genetic disorder.

A true tale told by a mother, it’s the story of a little girl, of family, friends, and the medical community united to define life by its beauty rather than its length. On the day Thaïs turns two, her mother, the author Anne-Dauphine Julliand, learns that her child has an untreatable genetic disease, the rarest of the rare, a silent disorder that will slowly paralyze her daughter’s nervous system and kill her. Metachromatic leukodystrophy—MLD—is the diagnosis. There is no cure.

While the disease may be grim, neither this book nor the people in it are. Grace, dignity, and most of all love mark the lives of all those involved in the care of Thaïs. Julliand does not play down the pain of her child or of her family, or the exhaustion, discouragement, or burden each of them carries. She promises her daughter a full life—not a life like other children have—but a happy life, a life of love. Thaïs’s family and the medical staff around her fight to provide comfort and efficient care, to conserve her dignity, to give her love, to “add life to days when we cannot add days to life.”

Editorial Reviews

From the Publisher
Reviews for the international bestseller Two Small Footprints in Wet Sand

"Though the author’s account charts suffering of mythic proportions, the lessons gleaned from her daughters prove incredibly wise. Unflinching and inspirational, a parent’s powerful tale of finding love and understanding beyond the senses."
—Kirkus Reviews

“Exceptional insights into life.”
—ELLE

“A story carried by the incredibly tranquility of spirit of a mother put to the test.”
—Le Point

“An extraordinary autobiographical account.”

Related Subjects

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