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<title>もやもや病日記</title>
<link>https://ameblo.jp/loyad/</link>
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<description>もやもや病が発覚し、現在経過観察中です。マイペースに投稿しますので、よろしくお願いします！</description>
<language>ja</language>
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<title>もやもや病と私の出会い②</title>
<description>
<![CDATA[ <p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">紹介されたのは、近所の大学病院。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">受付を済ませ、名前を呼ばれ、診察室へ入る。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">医師は紹介状とMRIの画像を見ながら静かに言いました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">「追加で、カテーテル検査とSPECT検査を行いましょう。日程を調整します。」</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">淡々と説明される言葉の中に、「脳の血管の状態を詳しく調べる必要がある」という重みが隠されていました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">一瞬、呼吸が止まった気がしました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">――大変だ。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">――私、どうなっちゃうんだろう。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">家に帰ってからも、不安はどんどん膨らんでいきます。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">検査までの日々は、長く、重く、胸を締めつけました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">夜になると、頭の中で最悪のシナリオが何度も再生されます。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">「もしも倒れたら」「もしも、もう目が覚めなかったら」</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">そんな考えが止められず、布団の中で目を開けたまま朝を迎えることもありました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">ある日、不安が頂点を超え、呼吸がうまくできなくなりました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">胸がぎゅっと締め付けられ、手足がしびれ、頭が真っ白になる。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">――過呼吸。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">人生で初めて、自分で119番を押しました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">サイレンの音が遠くで近づいてくる間、「こんなはずじゃなかった」と涙がこぼれました。</span></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 12px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0); min-height: 13.8px;"><span style="font-kerning: none;"></span><br></p><p style="margin-bottom: 12px; font-style: normal; font-variant-caps: normal; font-stretch: normal; font-size: 19px; line-height: normal; font-family: &quot;Times New Roman&quot;; font-size-adjust: none; font-kerning: auto; font-variant-alternates: normal; font-variant-ligatures: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; font-feature-settings: normal; font-optical-sizing: auto; font-variation-settings: normal; -webkit-text-stroke-width: 0px; -webkit-text-stroke-color: rgb(0, 0, 0);"><span style="font-kerning: none;">一人暮らしの部屋に響く救急隊の足音が、現実を突きつけてきました。</span></p><div><span style="font-kerning: none;"><br></span></div>
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</description>
<link>https://ameblo.jp/loyad/entry-12923060747.html</link>
<pubDate>Fri, 15 Aug 2025 11:49:09 +0900</pubDate>
</item>
<item>
<title>もやもや病と私の出会い</title>
<description>
<![CDATA[ <p></p><p><span>ここ数年、数か月おきにふっと世界が揺れるような「めまい」がありました。</span></p><p><span>最初は「寝不足かな」「疲れてるだけかも」と思い、病院には行かずにやり過ごしていました。</span></p><p><span></span><br></p><p><span>でも――あまりにも定期的にやってくる。</span></p><p><span>しかも、日常のど真ん中で。</span></p><p><span>不安がじわじわと心に溜まり、「一度ちゃんと診てもらおう」と決心しました。</span></p><p><span></span><br></p><p><span>近所の脳神経外科クリニックでMRI検査を受け、検査後に医師から説明がありました。</span></p><p><span>画像を見ながら、先生がひと言。</span></p><p><span></span><br></p><p><span>「血管が、もやもやしてますね」</span></p><p><span></span><br></p><p><span>……もやもや？</span></p><p><span>その瞬間、頭の中は「？？？」でいっぱい。何のことなのか全く分かりません。</span></p><p><span></span><br></p><p><span>先生は続けました。</span></p><p><span>「すぐに紹介状を書きます。大きい病院で、詳しく診てもらってください。」</span></p><p><span></span><br></p><p><span>診察室を出たあと、手の中の紹介状がずっしりと重く感じました。</span></p><p><span>この日から、不安で眠れない夜が始まったのです。</span></p><br class="Apple-interchange-newline"><p></p>
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</description>
<link>https://ameblo.jp/loyad/entry-12921825283.html</link>
<pubDate>Sat, 09 Aug 2025 20:07:30 +0900</pubDate>
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