<?xml version="1.0" encoding="utf-8" ?>
<rss version="2.0" xmlns:atom="http://www.w3.org/2005/Atom">
<channel>
<title>理解こそが最大の特効薬ー起立性調節障害患者の声ー</title>
<link>https://ameblo.jp/odvoiceme/</link>
<atom:link href="https://rssblog.ameba.jp/odvoiceme/rss20.xml" rel="self" type="application/rss+xml" />
<atom:link rel="hub" href="http://pubsubhubbub.appspot.com" />
<description>無理解に苦しんでいる患者さんがいます。知ってください。この病気のことを。誤解しないでください。誤解の連鎖で傷つく人がいます。</description>
<language>ja</language>
<item>
<title>NewsItaliane</title>
<description>
<![CDATA[ <p align="center">&nbsp;</p><p align="left">Italian News&nbsp;in&nbsp;News Italian</p><h1>Earthquake, talks about the firefighter who wrote the little Julia: "My only a movement of the heart, not a hero '</h1><p>AMATEUR was the super-hero.&nbsp;The Italian myth that the world envies us and of which all the world has followed the exploits.&nbsp;The symbol of the great Italian flag heart.&nbsp;But then, after all the celebrity, the story of Andrea De Filippo, the firefighter who after 16 hours rescued a girl of nine years from the house destroyed by the earthquake and failed to rescue the little sister of four whose coffin did find a letter, begins to clarify better.&nbsp;And adding new details.&nbsp;One is the tweet (which Andrea now apologizes and who yesterday removed) written just after the disaster: "Laura Boldrini, you give housing to the displaced or continue to put those parasites of immigrants?".</p><p>Here Andrea De Filippo, 27, a voice almost frightened by too much unexpected celebrity.&nbsp;What made you decide to throw in the rubble of that house in Pescara del Tronto?&nbsp;"It was an instinctive gesture.&nbsp;What it derived from my public spirit which is very strong. "&nbsp;The little Giorgia was saved, the eldest sister Giulia no.&nbsp;"In fact in my letter I write to the child that there is more: so sorry, we did not have time."&nbsp;Andrea, you know that she has become a national hero and is known by everyone in the world as a great savior?&nbsp;"Useless hero, spot savior of the people, I am only a human being.&nbsp;And as such, in that terrible night, I went to make my contribution. "</p><p>In that fire brigade it is?&nbsp;"I'm not even a real fireman, only a volunteer firefighter who wants to become a firefighter and I hope to do."&nbsp;It tells us how it went well?&nbsp;"Truly, I did not do to free Georgia from the debris that had buried Giulia.&nbsp;All I did was, in the dust of this house of Pescara del Tronto, to take away with tens of dry debris and rubble.&nbsp;Giorgia I saw while I was in the dust, but it was saved: they had just released the firefighters. "</p><p>But he threw himself in the ruins?&nbsp;"Like I said, mine was just an instinctive gesture.&nbsp;As soon as I heard about the earthquake I was mobilized.&nbsp;In these situations so terrible, humans must do humans.&nbsp;Simply".&nbsp;And a letter for the funeral of Julia, Mr. Andrea volunteer firefighter, why he decided to write it?&nbsp;"Always for the same reason.&nbsp;A movement of the heart but also perhaps of reason.&nbsp;I took paper, pen, and it turns out that text that toured the world but I do not want to be a character.&nbsp;My moral task is to give a hand. "</p><h1>Massimo Caico: "The doll and a pink shirt, so I saved the little Giorgia"</h1><p>"I'm not a guy who likes to tell, but this time my wife Edwige insisted: foul, Massimo says Giorgia and how you saved, giving anyone this story.&nbsp;So ok, maybe this time he Edwige reason.&nbsp;I Massimo Caico, firefighter in Teramo fire with twenty years of service, and will never forget the eyes of that little girl of four years which hatch and comes back to life after more than 16 hours under two meters of rubble. "</p><p>But how did you survive?&nbsp;<br>"He had a mouth full of earth, was completely submerged, but saved her the body of her older sister, Julia, who unfortunately found dead.&nbsp;Somehow, the he filtered in a breath of air.&nbsp;And it is enough ".</p><p>At that time he started to dig?&nbsp;<br>"Around the 9. At the first shock and I Edwige we woke up: for her it was a nightmare coming back, the same fear of the Eagle night when the house in Teramo could not stop dancing.&nbsp;I do not know yet, but Aquila was there four rotations in shifts, so many bodies extracted but no one alive.&nbsp;At 5 I got to the core of Teramo: at 8 started our column, an hour later we were in Pescara del Tronto ".</p><p>In what remained of Pescara del Tronto.&nbsp;<br>"There were so many rescue workers already working at various places, they tell us that you are looking for two girls in the place where a house collapsed.&nbsp;Parents have them extracted, alive but in serious condition.&nbsp;With a colleague we start digging where they thought the room was small.&nbsp;We work for hours, but we do not find anything. "</p><p>No noise?&nbsp;No complaint?&nbsp;<br>"Nothing.&nbsp;But at some point comes a doll.&nbsp;Perhaps we are, I tell myself.&nbsp;We continue to dig and check a stuffed animal;&nbsp;then another, here is a table of plastic dolls.&nbsp;But you do not hear a sound.&nbsp;No noise.&nbsp;It's already afternoon, we continue to dig without a moment's pause.&nbsp;There comes a labrador dog lovers nuclei, we take the opportunity to eat a sandwich. "</p><p>Did you find the dog?&nbsp;<br>"He sensed something, but unfortunately the signal was not very clear.&nbsp;But for us it was an extra incentive: the time goes too fast when excavations.&nbsp;It was already 18. It's been too many hours, we say.&nbsp;I'm afraid it again as Aquila, which I will not find anyone alive.&nbsp;And at that moment touch the edge of a mattress. "</p><p>the bedroom of the girl child?&nbsp;<br>"We dig furiously: if it is them, we will find you soon.&nbsp;After a while 'emerges the edge of a cushion.&nbsp;And there beside the foot of a child. "</p><p>Giorgia?&nbsp;<br>"No.&nbsp;It was Julia, abhbiamo knew then.&nbsp;That leg was cold.&nbsp;Bad sign.&nbsp;But we always hope.&nbsp;Continuing to dig deep risks to slide in the hole debris from the edges.&nbsp;But be quick, so we used buckets.&nbsp;We cleaned up the leg of a child half.&nbsp;Cold and completely buried.&nbsp;But that's where the nightmare turned into a dream. "</p><p>What do you mean?&nbsp;<br>"From the house downstream colleagues are pulling out the body of a person.&nbsp;Do not believe me anymore, you know?&nbsp;But while I pick up the cold leg Giulia see the earth moving nearby, with the rhythm of what could be a breath.&nbsp;At that moment the earth started shaking very strong: another shock, and very intense.&nbsp;"Shut up a minute," I shouted to colleagues and relief workers.&nbsp;I was not sure of anything, but we heard the wail of a child.&nbsp;Flebile, almost imperceptible, but there was.&nbsp;"She's alive!" I yelled.&nbsp;"Breathe, the earth moves for that."&nbsp;An emotion gorgeous.&nbsp;I get pats on the back, there's a euphoria that puts chills but we can only think of digging. "</p><p>By then it was made?&nbsp;<br>"Not yet.&nbsp;Here are the shorts in pink.&nbsp;We find the femur, the thigh here.&nbsp;We scratch off the ground with your hands, going down the leg.&nbsp;It was hot, yes.&nbsp;Wonderful.&nbsp;We stop a moment to give space to doctors, who rush to put on a drip to stabilize the child.&nbsp;Tap again to us.&nbsp;He curled up under her older sister, who instead is lying.&nbsp;Maybe they are embraced in sleep or fear, and the body has saved Giulia Giorgia.&nbsp;It was upside down, in the midst of the unstable ground, a new shock could nullify everything.&nbsp;We accelerated trying to find his head.&nbsp;I found a tuft of hair.&nbsp;Now it was done.&nbsp;That face, those eyes here is that hatch, and I will never forget.&nbsp;His mouth was full of earth, who knows how he breathe.&nbsp;As soon as we pulled it has spat off a bit '.&nbsp;It was virtually unharmed, I swear that if there are miracles this is it for sure. "</p><p>She had fainted?&nbsp;<br>"No, indeed.&nbsp;"Water, water," he said at once and I and my colleague spent the doctors.&nbsp;Some of us from behind asked: what's your name?&nbsp;And she: "Giorgia" As soon as the doctors have finished the first intervention and have moved away, I went back to digging.&nbsp;There was still his sister.&nbsp;We pulled out a few minutes later, battered by the weight of the rubble.&nbsp;You never get used</p><p>see a broken life.&nbsp;The sadness it bisects.&nbsp;Maybe you have not been fast enough.&nbsp;But I imagined her father's emotion when he found out that at least not lost them both, his daughters.&nbsp;And my, I did not have children but now maybe I have one. "</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287737346.html</link>
<pubDate>Wed, 28 Jun 2017 15:19:11 +0900</pubDate>
</item>
<item>
<title>無意識の防御反応</title>
<description>
<![CDATA[ <p>無意識の防御反応</p><p>&nbsp;</p><p>&nbsp;</p><p>人は悲しいことがあると</p><p>&nbsp;</p><p>それを忘れようと</p><p>&nbsp;</p><p>それを考えないようにしようと</p><p>&nbsp;</p><p>努めるものです</p><p>&nbsp;</p><p>その防御反応に</p><p>&nbsp;</p><p>反抗するように</p><p>&nbsp;</p><p>全力で抗うように</p><p>&nbsp;</p><p>私は生きて</p><p>&nbsp;</p><p>悲しいことを忘れられずに</p><p>&nbsp;</p><p>私はこの病気になりました</p><p>&nbsp;</p><p>ODの患者さんは</p><p>&nbsp;</p><p>本当にやさしい人が多いのです</p><p>&nbsp;</p><p>感受性が強くて</p><p>&nbsp;</p><p>悲しいことを他人事にできなくて</p><p>&nbsp;</p><p>それで私はこの病気になりました</p><p>&nbsp;</p><p>親の気持ちを傷つけないように</p><p>&nbsp;</p><p>そう全力で振る舞い続けて</p><p>&nbsp;</p><p>精神を壊してしまう人</p><p>&nbsp;</p><p>それをACと呼びますが</p><p>&nbsp;</p><p>そのような人も</p><p>&nbsp;</p><p>本当にやさしい人ばかりです</p><p>&nbsp;</p><p>無意識の防御反応に</p><p>&nbsp;</p><p>逆らうように生きて</p><p>&nbsp;</p><p>他人の悲しみや苦しみを</p><p>&nbsp;</p><p>全力で受け容れようとして</p><p>&nbsp;</p><p>それで病気になった</p><p>&nbsp;</p><p>そんな人もたくさんいます</p><p>&nbsp;</p><p>病気の人を故意に傷つけることを</p><p>&nbsp;</p><p>シックハラスメントと呼ぶそうです</p><p>&nbsp;</p><p>ツイッターに流れてきた情報で知りましたが</p><p>&nbsp;</p><p>それで傷ついている人が多くいます</p><p>&nbsp;</p><p>細やかな心をもって</p><p>&nbsp;</p><p>発作が起きたら周りに迷惑がかかるとか</p><p>&nbsp;</p><p>立ちくらみが起きたら周りに心配をかけてしまうとか</p><p>&nbsp;</p><p>そんなことを心配して</p><p>&nbsp;</p><p>本人は何も悪くないのに</p><p>&nbsp;</p><p>そんなことが</p><p>&nbsp;</p><p>平然と行われているのです</p><p>&nbsp;</p><p>病気で苦しんでいるのに</p><p>&nbsp;</p><p>それに追い打ちをかけるようなことは</p><p>&nbsp;</p><p>本当につらいです</p><p>&nbsp;</p><p>周りのことを心配しすぎて</p><p>&nbsp;</p><p>悲しい事件や事故を</p><p>&nbsp;</p><p>他人事だと割り切れなくて</p><p>&nbsp;</p><p>自分のこととして考えている</p><p>&nbsp;</p><p>そんな人がたくさんいるのです</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287735335.html</link>
<pubDate>Wed, 28 Jun 2017 15:10:31 +0900</pubDate>
</item>
<item>
<title>誰かの肌のぬくもりを</title>
<description>
<![CDATA[ <p>誰かの肌のぬくもりを</p><p>&nbsp;</p><p>&nbsp;</p><p>私は自分を愛せないから</p><p>&nbsp;</p><p>誰かに愛してほしいのです</p><p>&nbsp;</p><p>私は自分が嫌いで嫌いで仕方なくて</p><p>&nbsp;</p><p>だから誰かの愛で満たされたいのです</p><p>&nbsp;</p><p>頑張ってるのに認めてくれなくて</p><p>&nbsp;</p><p>苦しんでるのに理解してくれなくて</p><p>&nbsp;</p><p>そんな空間の逃げ道がほしいだけ</p><p>&nbsp;</p><p>たったそれだけのことなのに</p><p>&nbsp;</p><p>どうしてこんなに難しいのだろう</p><p>&nbsp;</p><p>起立性調節障害は</p><p>&nbsp;</p><p>まだまだ理解が足りていません</p><p>&nbsp;</p><p>どんなに頑張って</p><p>&nbsp;</p><p>遅刻して学校に行っても</p><p>&nbsp;</p><p>周りには冷たい目で見られます</p><p>&nbsp;</p><p>また遅刻したのかと</p><p>&nbsp;</p><p>先生には言われます</p><p>&nbsp;</p><p>また遅刻したのかと</p><p>&nbsp;</p><p>家族は私を責めます</p><p>&nbsp;</p><p>親に愛されず</p><p>&nbsp;</p><p>担任に愛されず</p><p>&nbsp;</p><p>それがもとで</p><p>&nbsp;</p><p>自分自身さえ愛せない私が</p><p>&nbsp;</p><p>誰でもいい誰かの愛に</p><p>&nbsp;</p><p>埋もれたいのです</p><p>&nbsp;</p><p>家にも居場所がなく</p><p>&nbsp;</p><p>学校にも居場所がなく</p><p>&nbsp;</p><p>そして自分自身の心の中でさえ</p><p>&nbsp;</p><p>私を迫害するような</p><p>&nbsp;</p><p>こんな空間で</p><p>&nbsp;</p><p>誰かからの愛を求めているのです</p><p>&nbsp;</p><p>誰かの肌のぬくもりを</p><p>&nbsp;</p><p>私も感じたいのです</p><p>&nbsp;</p><p>抱き締められて</p><p>&nbsp;</p><p>大丈夫だよ</p><p>&nbsp;</p><p>よく頑張ったね</p><p>&nbsp;</p><p>そう言ってもらいたい</p><p>&nbsp;</p><p>そう声をかけてもらいたい</p><p>&nbsp;</p><p>たったそれだけ</p><p>&nbsp;</p><p>それだけを私は</p><p>&nbsp;</p><p>昨日も今日も</p><p>&nbsp;</p><p>望み続けているのです</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287734620.html</link>
<pubDate>Wed, 28 Jun 2017 15:07:13 +0900</pubDate>
</item>
<item>
<title>普通になりたい</title>
<description>
<![CDATA[ <p>普通になりたい</p><p align="left">&nbsp;</p><p>&nbsp;</p><p>私も頑張っているんです</p><p>&nbsp;</p><p>勉強しなきゃいけないのはわかっています</p><p>&nbsp;</p><p>予習とか復習とか</p><p>&nbsp;</p><p>しなきゃいけないのはわかっています</p><p>&nbsp;</p><p>進学校の勉強に追いつくために</p><p>&nbsp;</p><p>しなきゃいけないことくらい</p><p>&nbsp;</p><p>私にもわかります</p><p>&nbsp;</p><p>それでも病気なんです</p><p>&nbsp;</p><p>力が入らないんです</p><p>&nbsp;</p><p>精神的にも</p><p>&nbsp;</p><p>勉強しようという気力が起きません</p><p>&nbsp;</p><p>シャーペンを握ろうとしても</p><p>&nbsp;</p><p>手に力が入りません</p><p>&nbsp;</p><p>たとえ机に向かっても</p><p>&nbsp;</p><p>すぐに集中が切れるし</p><p>&nbsp;</p><p>何より怖いことをいろいろと考えてしまって</p><p>&nbsp;</p><p>勉強に身が入りません</p><p>&nbsp;</p><p>勉強だけじゃなくて</p><p>&nbsp;</p><p>普段の学校生活でも</p><p>&nbsp;</p><p>休み時間に立ち話をするといった</p><p>&nbsp;</p><p>皆にとって当たり前のことが</p><p>&nbsp;</p><p>私にはできないのです</p><p>&nbsp;</p><p>立ちくらみがひどくて</p><p>&nbsp;</p><p>体調が悪いときには</p><p>&nbsp;</p><p>その場に座り込んでしまいます</p><p>&nbsp;</p><p>また時々過呼吸を起こして</p><p>&nbsp;</p><p>息をすることさえ苦しくなります</p><p>&nbsp;</p><p>そうでなくても</p><p>&nbsp;</p><p>自分に自信がもてなくて</p><p>&nbsp;</p><p>自分ですら自分を愛せなくて</p><p>&nbsp;</p><p>だから誰かに話したくなる</p><p>&nbsp;</p><p>だから誰かを頼りたくなる</p><p>&nbsp;</p><p>そんな誰かの存在は</p><p>&nbsp;</p><p>そんな誰かの温かな存在は</p><p>&nbsp;</p><p>私にはいません</p><p>&nbsp;</p><p>私を愛してくれる誰かなどいません</p><p>&nbsp;</p><p>サボりですか</p><p>&nbsp;</p><p>怠け者ですか</p><p>&nbsp;</p><p>そうだとわかっていても私を責めないで</p><p>&nbsp;</p><p>私は何も悪くないって</p><p>&nbsp;</p><p>せめて自分だけは信じていたいのです</p><p>&nbsp;</p><p>もちろん病気が悪いわけでもなくて</p><p>&nbsp;</p><p>自分のストレッサ―が悪いわけでもなくて</p><p>&nbsp;</p><p>誰も何も悪くないのに</p><p>&nbsp;</p><p>誰も何も悪くないのだから</p><p>&nbsp;</p><p>私を責めないでください</p><p>&nbsp;</p><p>私だって普通になりたい</p><p>&nbsp;</p><p>勉強したいし</p><p>&nbsp;</p><p>運動もしたいし</p><p>&nbsp;</p><p>とにかく皆がしているようなことがしたい</p><p>&nbsp;</p><p>皆が普通にしていることは</p><p>&nbsp;</p><p>私にとっては全然普通なんかじゃなくて</p><p>&nbsp;</p><p>自分ができる最大限のことは</p><p>&nbsp;</p><p>私がいくら頑張ってそれをしていたとしても</p><p>&nbsp;</p><p>皆にとってはそれが</p><p>&nbsp;</p><p>当たり前</p><p>&nbsp;</p><p>当たり前なんです</p><p>&nbsp;</p><p>皆にとっての当たり前は</p><p>&nbsp;</p><p>私にとっては当たり前なんかで全然なくて</p><p>&nbsp;</p><p>そこに至るためには</p><p>&nbsp;</p><p>ほかの人の何倍も</p><p>&nbsp;</p><p>ときには何十倍も</p><p>&nbsp;</p><p>頑張らないと追いつけません</p><p>&nbsp;</p><p>頑張っても追いつけません</p><p>&nbsp;</p><p>普通って何ですか</p><p>&nbsp;</p><p>私もそこに入りたいのです</p><p>&nbsp;</p><p>当たり前って何ですか</p><p>&nbsp;</p><p>私もそれを当たり前に</p><p>&nbsp;</p><p>何の苦労もせずに</p><p>&nbsp;</p><p>できるようになりたいのです</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287734421.html</link>
<pubDate>Wed, 28 Jun 2017 15:06:20 +0900</pubDate>
</item>
<item>
<title>たった一言で</title>
<description>
<![CDATA[ <p>たった一言で</p><p>&nbsp;</p><p>&nbsp;</p><p>たった一言で</p><p>&nbsp;</p><p>人は傷つき</p><p>&nbsp;</p><p>たった一言で</p><p>&nbsp;</p><p>人は救われる</p><p>&nbsp;</p><p>人間はそんなにも</p><p>&nbsp;</p><p>もろく単純な生き物で</p><p>&nbsp;</p><p>人間はそんなにも</p><p>&nbsp;</p><p>誰かという存在が必要な生き物です</p><p>&nbsp;</p><p>たった一言誰かが</p><p>&nbsp;</p><p>起立性調節障害って怠けでしょって</p><p>&nbsp;</p><p>嘲笑する</p><p>&nbsp;</p><p>ただそれだけで</p><p>&nbsp;</p><p>私は傷つきます</p><p>&nbsp;</p><p>たった一言誰かが</p><p>&nbsp;</p><p>起立性調節障害って大変だよねって</p><p>&nbsp;</p><p>優しく言ってくれる</p><p>&nbsp;</p><p>ただそれだけで</p><p>&nbsp;</p><p>私は救われます</p><p>&nbsp;</p><p>誰か他人の</p><p>&nbsp;</p><p>理解が必要な病気なのです</p><p>&nbsp;</p><p>身勝手かもしれませんが</p><p>&nbsp;</p><p>理解してくれれば</p><p>&nbsp;</p><p>症状は乗り越えられる</p><p>&nbsp;</p><p>というわけではありませんが</p><p>&nbsp;</p><p>だいぶ心が楽になります</p><p>&nbsp;</p><p>たった一言が</p><p>&nbsp;</p><p>人を追い詰めて</p><p>&nbsp;</p><p>たった一言で</p><p>&nbsp;</p><p>誰かが救われる</p><p>&nbsp;</p><p>そんな言葉の力は</p><p>&nbsp;</p><p>私にも</p><p>&nbsp;</p><p>そしてあなたにも</p><p>&nbsp;</p><p>使えるものなのです</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287734228.html</link>
<pubDate>Wed, 28 Jun 2017 15:05:36 +0900</pubDate>
</item>
<item>
<title>誤解の連鎖</title>
<description>
<![CDATA[ <p>誤解の連鎖</p><p>&nbsp;</p><p>&nbsp;</p><p>誤解の連鎖が人を苦しめる</p><p>&nbsp;</p><p>自分の症状が誰かに誤解され</p><p>&nbsp;</p><p>その誤解した誰かが</p><p>&nbsp;</p><p>また別の誰かに誤解した内容を</p><p>&nbsp;</p><p>誤解していると知らずに伝え</p><p>&nbsp;</p><p>その別の誰かが</p><p>&nbsp;</p><p>誤解しているなんて知らずに</p><p>&nbsp;</p><p>ほかの誰かに伝えていく</p><p>&nbsp;</p><p>そんな連鎖に巻き込まれた自分は</p><p>&nbsp;</p><p>自分自身のことさえも</p><p>&nbsp;</p><p>誤解してしまいます</p><p>&nbsp;</p><p>周りが怠け者だと</p><p>&nbsp;</p><p>私のことを言います</p><p>&nbsp;</p><p>親も学校も先生も</p><p>&nbsp;</p><p>私の症状を認めてくれようとはしません</p><p>&nbsp;</p><p>そうです</p><p>&nbsp;</p><p>無理解がつらいのです</p><p>&nbsp;</p><p>無理解こそがつらいのです</p><p>&nbsp;</p><p>誤解の連鎖が</p><p>&nbsp;</p><p>人を追い詰めて</p><p>&nbsp;</p><p>誤解の連鎖が</p><p>&nbsp;</p><p>人を苦しめる</p><p>&nbsp;</p><p>自分自身を誤解して</p><p>&nbsp;</p><p>自分自身を信じれなくなったら</p><p>&nbsp;</p><p>もう自分は壊れていきます</p><p>&nbsp;</p><p>自分が嫌いで</p><p>&nbsp;</p><p>自分が情けなくて</p><p>&nbsp;</p><p>自分が自分でいられなくなって</p><p>&nbsp;</p><p>誤解の連鎖の中で</p><p>&nbsp;</p><p>いつまでも苦しむのです</p><p>&nbsp;</p><p>誤解の連鎖から</p><p>&nbsp;</p><p>人を断ち切るには</p><p>&nbsp;</p><p>理解の連鎖を</p><p>&nbsp;</p><p>広めればよいのです</p><p>&nbsp;</p><p>起立性調節障害は</p><p>&nbsp;</p><p>怠けでもサボりでもない</p><p>&nbsp;</p><p>まず自分自身が</p><p>&nbsp;</p><p>それをしっかりと理解して</p><p>&nbsp;</p><p>そしてほかの誰かが</p><p>&nbsp;</p><p>きっと理解してくれるはずです</p><p>&nbsp;</p><p>インターネットには</p><p>&nbsp;</p><p>オレンジブレスレット運動という</p><p>&nbsp;</p><p>運動があります</p><p>&nbsp;</p><p>それは起立性調節障害への理解を</p><p>&nbsp;</p><p>深めるためのものです</p><p>&nbsp;</p><p>その連鎖が広まれば</p><p>&nbsp;</p><p>きっともう誰にも</p><p>&nbsp;</p><p>怠けだとかサボりだとか</p><p>&nbsp;</p><p>言われなくなる</p><p>&nbsp;</p><p>そして苦しみの渦に巻き込まれる</p><p>&nbsp;</p><p>患者さんが減る</p><p>&nbsp;</p><p>その連鎖が</p><p>&nbsp;</p><p>生まれることを願って</p><p>&nbsp;</p><p>私は今日も</p><p>&nbsp;</p><p>自分を理解しようと努めているのです</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287734032.html</link>
<pubDate>Wed, 28 Jun 2017 15:04:44 +0900</pubDate>
</item>
<item>
<title>100％の理解は無理でも</title>
<description>
<![CDATA[ <p>100％の理解は無理でも</p><p>&nbsp;</p><p>&nbsp;</p><p>人間は人間を理解することができません</p><p>&nbsp;</p><p>人間は人間を受容することができません</p><p>&nbsp;</p><p>なぜなら人の痛みはわからないもので</p><p>&nbsp;</p><p>なぜなら人の感情は誤解の連鎖でできているものだからです</p><p>&nbsp;</p><p>例えば私の前で誰かが</p><p>&nbsp;</p><p>痛いとか苦しいとか</p><p>&nbsp;</p><p>言っていたとしましょう</p><p>&nbsp;</p><p>そのとき私は</p><p>&nbsp;</p><p>大丈夫かと</p><p>&nbsp;</p><p>声をかけるとは思いますが</p><p>&nbsp;</p><p>相手はどれくらい痛がっているのか</p><p>&nbsp;</p><p>相手はどれくらい苦しんでいるのか</p><p>&nbsp;</p><p>正確には理解できないものです</p><p>&nbsp;</p><p>逆にまた他人も</p><p>&nbsp;</p><p>私が痛いとか苦しいとか</p><p>&nbsp;</p><p>言っていることを</p><p>&nbsp;</p><p>完全に理解することはできません</p><p>&nbsp;</p><p>理解ができないからと言って</p><p>&nbsp;</p><p>この病気を理解しようとするのをやめないでください</p><p>&nbsp;</p><p>症状を列挙しても</p><p>&nbsp;</p><p>伝わらない</p><p>&nbsp;</p><p>伝わりにくい</p><p>&nbsp;</p><p>だから理解されにくいのです</p><p>&nbsp;</p><p>100％の理解は無理です</p><p>&nbsp;</p><p>100％の理解は無理でも</p><p>&nbsp;</p><p>私が求めているのは</p><p>&nbsp;</p><p>理解しようとする姿勢なのです</p><p>&nbsp;</p><p>理解してほしい</p><p>&nbsp;</p><p>それは完全には不可能ですが</p><p>&nbsp;</p><p>理解しようとして</p><p>&nbsp;</p><p>少しでも歩み寄ってくれたら</p><p>&nbsp;</p><p>患者さんは救われます</p><p>&nbsp;</p><p>理解しようとするその姿勢が</p><p>&nbsp;</p><p>一段深い理解へと繋がります</p>
]]>
</description>
<link>https://ameblo.jp/odvoiceme/entry-12287733851.html</link>
<pubDate>Wed, 28 Jun 2017 15:03:58 +0900</pubDate>
</item>
</channel>
</rss>
